Caregiver Toolkit

A note from me

If you are caring for an aging parent while raising children, you are not alone, and you are not failing. You are carrying a lot.

I made this toolkit to give you simple tools you can use this week: a checklist for doctor visits, a simple way to describe symptoms, a one page care organizer, and questions to ask your employer about caregiver support. Print it, save it on your phone, or share it with a sibling who is helping.

With warmth,
Dr. Irina Koyfman, DNP

Checklist for doctor visits

A little preparation turns a rushed 15 minute visit into a useful one. Use this for your parent, your child, or yourself.

Before the visit

During the visit

After the visit

How to describe a symptom: OLDCART

Nurses and doctors use OLDCART to understand a symptom quickly. When you walk in with these answers ready, the visit moves faster and nothing important gets missed. Here is an example for a parent who feels dizzy.

LetterStands forAsk yourselfExample
OOnsetWhen did it start? Was it sudden or slow?Started 3 days ago, suddenly, when she stood up
LLocationWhere is it? Does it spread anywhere?Whole head, does not spread
DDurationHow long does each episode last?About 1 minute each time
CCharacterWhat does it feel like?Room spinning, feels off balance
AAggravating factorsWhat makes it worse?Standing up fast, turning her head
RRelieving factorsWhat makes it better? What have you tried?Sitting down, drinking water
TTimingHow often does it happen? Any pattern?3 or 4 times a day, mostly mornings

Also rate how bad it is from 0 to 10, and note anything new that came with it, such as a new medicine, a fall, or a fever.

If a symptom is sudden and severe, like chest pain, trouble breathing, or signs of a stroke, do not wait for the appointment. Call 911.

One page care organizer

Keep one page like this for each person you care for. When an emergency comes, everything is in one place, and anyone in the family can step in.

About the person

ItemDetails
Name
Main health conditions
Allergies
Preferred hospital
Pharmacy and phone
Insurance plan and member ID location
Where legal papers are kept (health care proxy, power of attorney)

Care team

RoleNamePhoneNotes
Primary care doctor
Specialist
Specialist
Home care or aide

Medicines

MedicineDoseWhen takenPrescribed byRefill date

Who helps with what

TaskFamily memberHow often
Doctor visits
Medicines and refills
Bills and insurance
Groceries and meals
Phone calls and company

Upcoming appointments

DateDoctorReasonWho goes

Questions to ask your employer

Many working caregivers never ask about support, so they never learn what is already there. Asking is not a weakness. It is planning. Take these questions to HR or your manager.

Time off and leave

  1. Am I eligible for FMLA (unpaid, job protected family leave), and how do I apply?
  2. Does our state or company offer paid family leave?
  3. Can I use sick days or paid time off to care for a parent or child?
  4. Can I take leave in short blocks or a few hours at a time, not only full weeks?

Flexibility

  1. Could I adjust my hours, work from home some days, or shift my schedule for appointments?
  2. If I need a temporary change, who approves it and how long can it last?

Benefits and help

  1. Do we have an Employee Assistance Program (EAP)? Does it include caregiver counseling or referrals?
  2. Do we offer backup care, elder care referrals, or a caregiver benefit through a partner company?
  3. Is there a dependent care account I can use for adult day care or child care?
  4. Is there an employee group for caregivers or parents I can join?

Before you go: write down what you need, for how long, and how your work will still get done. A clear plan makes a yes much easier.

Rules on leave differ by state and by company, so check your own handbook and ask HR to confirm anything in writing.

Where to go from here

These tools are a starting point. If you want the full system for caring for two generations without losing yourself, my books go deeper.

For more tools, articles, and my talks, visit sandwich-generation.org. If your organization runs chronic care management or remote patient monitoring, visit affinityexpert.com.

Hosting a podcast, a caregiver group, or an employee event? I would love to join you. Invite me to speak.

This toolkit is for general information and does not replace advice from your own doctor or care team.